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Five-Year-Old’s Arm Saved Through Tissue Donation

April 13th, 2012 | No Comments | Posted in Uncategorized

Five-year-old Elizabeth Link began complaining about an ache in her arm. Soon the pain would wake her up at night and her parents knew she needed to see a physician. After an exam by her pediatrician, she was sent for an X-ray at Children’s Hospital in Columbus, OH. A lesion was found on her upper right humerus.

After a consult with an oncologist, Elizabeth had an MRI performed and later a biopsy. She was diagnosed with osteosarcoma – a form of bone cancer. Within a few days, she started chemotherapy. At the beginning of the week, Elizabeth was a healthy little girl. By the end of the week, she was a patient diagnosed with aggressive cancer that needed immediate treatment.

Elizabeth got used to the chemo, but nothing could take away the excruciating pain she felt in her arm. Dr. Mayerson broke the tough news that this type of cancer kills bone. Elizabeth would either need to have her arm amputated or she could undergo a transplant of a human allograft bone to give her a chance of keeping her arm and maintaining good mobility. While uncommon to find a bone of the right size for someone as small as Elizabeth, through the efforts of Gift of Hope, AlloSource and the entire tissue donation community, a suitable donor was found.

The surgery was a success and Elizabeth’s pain stopped almost immediately after the procedure. Later, Elizabeth’s family learned that a five-year-old girl had lost her life and it was her bone that was used to repair Elizabeth’s arm. The little girl’s grandmother sent a letter to Elizabeth and told her that the little girl liked to wear skirts, play with Polly Pockets and loved to draw.

The most amazing thing is that Elizabeth’s ability to draw and paint has improved dramatically after receiving her new bone – even to the point that her teacher at school has made comments about it. Elizabeth’s family likes to think a little part of the donor is coming through in their daughter.

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The Power of Two

May 17th, 2011 | No Comments | Posted in Uncategorized

Happy Donate Life Month!

In celebration of National Donate Life Month, our friends who are producing the “The Power Of Two Film” are announcing a new app for iPads:  The Daily Gift iPad application.  This app is the first iPad app focused on sharing organ donation and transplantation stories and inspiring people to become organ donors.  The Daily Gift is available to download for free at http://iTunes.com/apps/thedailygift/.

“The Power Of Two Film” is a multimedia project that uses powerful storytelling to engage communities in critical discussions around organ donation and transplantation, and awareness of cystic fibrosis and other chronic illnesses. 

The project is centered around the feature documentary of the same, which offers an intimate portrayal of the bond between half-Japanese twin sisters Anabel Stenzel and Isabel Stenzel Byrnes, their lifelong battle with CF, survival through miraculous double lung transplants, and improbable emergence as authors, athletes and global advocates for organ donation.

Alongside production of the film, the “The Power Of Two” crew recorded VideoGrams — short testimonials reflecting on the power of organ donation.  Throughout National Donate Life Month in April 2011, “The Daily Gift” will feature 30 VideoGrams, one premiering each day, and will also provide interactive information about organ donation and transplantation, and empower users to register as organ donors.

Pleased see our new trailer:

And our updated website at www.ThePowerOfTwoMovie.com.

For more information, contact the producers at thepoweroftwomovie@gmail.com

Please feel free to circulate this to spread the message of organ donation.

Thomas J. Starr, CEO, Founder
Miracles for Life

Are Coffee Drinkers Less Prone to Aggressive Breast Cancer?

May 16th, 2011 | No Comments | Posted in Uncategorized

Women who drink a substantial amount of coffee each day may lower their risk for developing a particular type of breast cancer, Swedish researchers say.

Their study linked consumption of five or more cups of coffee a day to a relatively marked reduction in the non-hormone-responsive disease known as ER-negative breast cancer. However, coffee consumption did not appear to lower the risk for developing ER-positive breast cancer, a hormone-responsive estrogen receptor form of the disease.

Daily consumption of coffee may protect against the most aggressive type of breast cancer, ER-negative, said study co-author Dr. Per Hal, a professor in the medical epidemiology and biostatistics department at the Karolinska Institute in Stockholm.

“Now, we don’t have all the details,” he cautioned. “We don’t know, for example, what specific type of coffee we’re talking about here. But what we do know is that the protective effect is quite striking and remains even after adjusting for a lot of other factors that have the potential to play a protective role. And we know that we’re talking about what we could call a relatively normal amount of coffee drinking. Certainly we’re not talking about consuming gigantic amounts of coffee. So, this is a very intriguing finding.”

The study, reported online May 11 in Breast Cancer Research, involved 5,929 Swedish women, aged 50 to 74. About half of the women had breast cancer.

Questionnaires were used to assess behavioral and health characteristics, including smoking and drinking patterns, physical activity routines, family history of breast cancer, hormone therapy protocols, nutritional intake, body mass index, education level and coffee consumption habits. Both tumor status and breast cancer type were also noted.

The principle finding: Drinking coffee appeared to spur a “strong reduction” in risk for ER-negative breast cancer, the researchers wrote. Women who drank five cups of coffee a day had a 33 percent to 57 percent lower risk for ER-negative cancer than did those who drank less than one cup a day.

The study revealed an apparent association between coffee consumption and a reduction in breast cancer risk, but not a cause-and-effect relationship.

And Hal was not eager for consumers to jump to conclusions.

“There are one or two other studies that have pointed in the same direction as ours — but not many, just a few,” he cautioned. “So before I would go to tell my neighbors to start drinking more coffee than they already do, I would like to know what is the biological mechanism at work here. And that’s not yet clear.”

Hal noted that he and his colleagues are now working on a new study to tease out that information.

Dr. Stephanie Bernik, chief of surgical oncology at Lenox Hill Hospital in New York City, described the findings as both “interesting” and “provocative,” given that the kind of cancer coffee appears to protect against is one for which there are relatively few effective treatments.

“It is this kind of study that opens the door to improving treatment, as scientists try to uncover what biologic factors in a substance are beneficial, and then attempt to extract these factors and use them to defend against cancers,” Bernik noted. “The goal would be to try and discover what it is in coffee that may be beneficial.”

“The next step is to find out what chemical factors in coffee cause the decreased rate of cancer and then attempt to see if these same chemicals can be used to treat a patient once they are already diagnosed with cancer,” she said.

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Beef Dinners for Two

August 9th, 2010 | No Comments | Posted in Uncategorized

r37064fpIngredients-

1 beef bone-in sirloin or round steak, 3/4 pound, 1 inch thick
2 garlic cloves, finely chopped
1/4 cup balsamic vinegar
1/4 cup water
1 tablespoon chopped fresh oregano leaves or 1 teaspoon dried oregano leaves
2 tablespoons olive or vegetable oil
1 1/2 teaspoons chopped fresh marjoram leaves or 1/2 teaspoon dried marjoram leaves
1 teaspoon sugar

Serve with…

Triple-Chocolate Cake Triple-Chocolate Cake
Total Time: 2 hours 0 min
1.Remove fat from beef. Cut beef into 1-inch pieces.
2.Mix remaining ingredients in medium glass or plastic bowl. Stir in beef until coated. Cover and refrigerate, stirring occasionally, at least 1 hour but no longer than 12 hours.
3.Set oven control to broil. Remove beef from marinade; reserve marinade. Thread beef on each of four 10-inch metal skewers, leaving 1/2-inch space between each piece. Brush kabobs with marinade.
4.Place kabobs on rack in broiler pan. Broil kabobs with tops about 3 inches from heat 6 to 8 minutes for medium-rare to medium doneness, turning and brushing with marinade after 3 minutes. Discard any remaining marinade.
1. Remove fat from beef. Cut beef into 1-inch pieces.
2. Mix remaining ingredients in medium glass or plastic bowl. Stir in beef until coated. Cover and refrigerate, stirring occasionally, at least 1 hour but no longer than 12 hours.
3. Set oven control to broil. Remove beef from marinade; reserve marinade. Thread beef on each of four 10-inch metal skewers, leaving 1/2-inch space between each piece. Brush kabobs with marinade.
4. Place kabobs on rack in broiler pan. Broil kabobs with tops about 3 inches from heat 6 to 8 minutes for medium-rare to medium doneness, turning and brushing with marinade after 3 minutes. Discard any remaining marinade.

Did You Know…

Although you might be tempted to serve the extra marinade with the cooked kabobs, you should discard any marinade that has been in contact with raw meat. Bacteria from the raw meat could transfer to the marinade.

Time Saver: To speed up prep, omit the garlic, vinegar, water, oregano, oil, marjoram and sugar, and instead, marinate the beef in 2/3 cup purchased Italian dressing in step 2.

Success: If using bamboo skewers, soak in water at least 30 minutes before using to prevent burning.

Nutrition Information:

1 Serving: Calories 180 (Calories from Fat 70 ); Total Fat 8 g (Saturated Fat 2 g); Cholesterol 60 mg; Sodium 45 mg; Total Carbohydrate 4 g (Dietary Fiber 0g); Protein 23 g Percent Daily Value*: Vitamin A 0%; Vitamin C 0%; Calcium 0%; Iron 12 % Exchanges: 1 Vegetable; 3 Lean Meat
*Percent Daily Values are based on a 2,000 calorie diet.
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Art Heals

February 23rd, 2010 | No Comments | Posted in Uncategorized

In this particular video, the focus is on people from the Mississippi State Hospital and their Community Services Program for people with mental illness. And while this may or may not be professional art therapy, it sure is tough to deny the therapeutic benefits art has on the seven people featured in this video. We can debate where art ends and therapy begins all we want, but if a person believes there is therapeutic benefit from the art they’re creating, why should anyone tell them differently? This video was inspiring, touching, and heartfelt for me. I hope you enjoy it as much as I did.

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Rotary Billboards on Wheels

February 23rd, 2010 | No Comments | Posted in Uncategorized

Each year, the trucking industry hauls nearly 11 billion tons of goods and commodities throughout the U.S. Large trucks and commercial tractor trailers, in particular, often travel hundreds of miles per day–across city, county and state lines–and are a common sight on U.S. roads. For this very reason, Rotarian Ken Burkel and the members of the Rotary Club of Clemmons, North Carolina, launched the “Have a Heart, Give a Part” program, which uses tractor trailers as rolling billboards to promote organ and tissue donation.

The purpose of the program is to heighten public awareness of the need for organ and tissue donations and to increase the number of donors in North Carolina. It was first and foremost an outgrowth of an earlier program, in which the rotary club collected 600 new organ donation cards from club members, their families and friends; but it was also a result of Burkel’s motivation to actively promote organ donation after attending a Transplant Speakers International (TSI) training event in the Winston-Salem area.

Burkel, who works as a corporate vice president of sales and marketing, proposed the billboard-on-wheels idea after noting how many trailers were being used as moving billboards. “I really became motivated after the training,” Burkel said, adding that the project has been “a lot of fun with a lot of really neat side benefits as well.”

Since the program’s inception in March 2008, the club has outfitted 22 tractor trailers with the “Have a Heart, Give a Part” slogan, contact information for Donate Life North Carolina, and pictures of donor families and recipients. Each truck design is unique and is paid for through grants, donations and the club’s own funds.

The trucks–the traveling billboards–are also donated. The first truck, for example, was donated by Greensboro, N.C.-based Triangle Warehouse & Distribution Services. The company donated the truck in memory of Valerie Anne Moser, who passed away in 2000 and became an eye and heart valve donor. Valerie was the daughter of David Moser, the company’s vice president.

Since the program’s launch, approximately 4,000 people have signed donor cards. Given the sobering statistics of organ donation, the figure is heartening. In 2006, an average of 17 people died every month while waiting for organ transplants.

“It’s hard to measure the impact this is having because thousands of people are exposed each day to the billboards,” Burkel said. “[But] although the results cannot be definitively measured, we believe the project has and will continue to raise awareness for organ and tissue donation in North Carolina in many and various ways. [In that way] this project has exceeded goals and expectations.”

The positive effects of the project have not gone unnoticed: This past August, Burkel and the Clemmons Club received the 2009 Nicholas Miller Award for Excellence in Donor Family Support for their efforts. The award is presented every other year and honors individuals or organizations who exhibit a commitment to donor families, or to donor families who have been instrumental in increasing donor awareness.

Martha Anderson, the Musculoskeletal Transplant Foundation’s executive vice president, donor services, said their work “provides powerful motivation and inspiration for all of us.”

And as one Nicholas Miller Award committee member explained: “The project completed by Ken Burkel and the Clemmons Rotary was, in my opinion, at an entirely different level than all other applications. It was very comprehensive, innovative, strategic and very labor intensive. There is no doubt that there is already great impact. The program seems set to continue to grow, and it is the sort of initiative that could be replicated elsewhere.”

TSI and LLTGL Join Forces To Increase Organ Donation

February 5th, 2010 | No Comments | Posted in Uncategorized

LLTGL TSI group shotLondon – On June 6th, 2009, Transplant Speakers International, Inc., an American organ transplantation education charity based in New Jersey joined forces with Live Life Then Give Life, an English transplantation charity based outside of London.

By becoming affiliates of each other Transplant Speakers International (TSI), who celebrated it’s tenth anniversary last year and Live Life Then Give Life (LLTGL) made both entities true international charities. The two charities share the same mission of increasing organ donation rates through the education of the general public.

Talks between the two organizations started about a year prior when Emma Harris, then CEO of LLTGL contacted TSI about the model used by TSI. TSI, who worked with fifty-three of the fifty-nine Organ Procurement Organizations (OPO’s) throughout the US, trains the volunteers of the various OPO’s how to make presentations in their local communities about the urgent need for organ donation.

Because of the differences between the two health care systems, LLTGL doesn’t have the equivalent of OPO’s to work with, as there is only the National Health Service, the centralized health system that also acts as the OPO for the entire commonwealth. Unfortunately however, at this stage of the talks between the two charities, Emma Harris had to step down because of health issues. Harris was on the lung waiting list at the time and Oli Lewington replaced Harris as CEO. Both Harris and Lewington thought the TSI model could be modified to work in local British situations.

Because of the copy-righted nature of all of TSI’s programs and documentation, talks quickly developed into the idea that both groups could benefit if the two companies became affiliates of each other.

Soon a team from TSI, consisting of Steven Taibbi, TSI vice-president and board member and Jack LoCicero, founding member and board member, were jetting to London to sign contracts and conduct a two day “train the trainer” training session with the group from LLTGL.

As a way of explaining the training that was given in England, what follows is a typical training that TSI would conduct for an OPO. At a usual TSI session the day opens with two workshops that run concurrently. One is called, Sorrowful Joy, and is for donors and donor families. In these groups, participants are able to express their concerns, and pains, that go part and parcel with being a donor family member. They are able to do this in a loving and caring environment. Tissues are always needed. Participants often express gratitude about their being able to put into words feelings they otherwise wouldn’t have been able to do.

The other workshop, called Grateful Guilt, is for organ recipients. Again, in a loving environment, recipients are able to share feelings of survivors guilt, a phenomenon that is fairly common. Also, they are able to express their feelings about how difficult it can be to be an organ recipient. Participants often not only express gratitude, but also how cathartic the experience was.

TSI always travels in teams; one donor/ donor family member and one recipient. TSI believes deeply that hearing both side of the transplant story is a far more powerful experience to the audience than simply hearing from either a donor or recipient alone. The team then models a presentation similar to that given to a high-school class. The donor side always goes first, followed by the recipient.

The volunteer class is then taught the most important element of the day. How to outline their story with the most powerful elements of their particular experience. In this way, the volunteer learns how to size their presentation to fit the venue, all the way from a sound-bite to a twenty minute or more presentation.

After a working lunch, each participant is given a set time to make a presentation to the room, where the class then comments on how the volunteer did. In this way, the first time they make a presentation is in a room that supports the volunteer, and thus cuts down the fear factor for the first time speaker to some degree.

Finally, participants are shown how to find venues for themselves and report them to the OPO. In this way, the volunteer really helps with the workload for the OPO.

The group in England really ate it up, and quickly caught on to the techniques developed by, and unique to, TSI.

LLTGL and TSI have found this partnership to be very useful. Both charities feature each other on their web site. Next, TSI and LLTGL are exploring ideas for an event that will raise awareness simultaneously on both sides of the pond.

By Jove, the work has just begun!

Life After Transplants

January 22nd, 2010 | No Comments | Posted in Uncategorized
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Carl Whittaker and Sherrie Panther

Carl has broken numerous records.
As part of a series of articles BBC News Online reporter Jane Elliott looks behind the scenes of the NHS.

This week we focus on the story of an athlete who first took up serious sport following a heart transplant.

Carl Whittaker has taken part in every British and World Transplant Games since 1985 and was the world 100 metres champion in 1995.

He competed in his first games just seven months after his transplant, when he shocked himself by running the 100 metres in just 13.3 seconds.

Now aged 43 Carl, who has a host of medals and trophies, is thinking of retiring from the world athletics stage but says he has thoroughly enjoyed the challenge.

Race.

“I am going to hang up my boots, I have won nearly everything I wanted to. I was the world champion.

“I have got records which nobody else has and if people know they are going to have to race me, they are worried.”
But Carl explained he had stumbled into the world of athletics by accident.

Just months after his heart transplant a man approached him at a check-up and asked him to take part in the games.

“This man came up to me and said ‘you look fit enough’. He asked me if I had heard about the transplant games and I said I didn’t know anything about it. He said he was sure I could run, but at that time I could hardly walk.”

Before his transplant Carl had been terminally sick. He’d started having problems in his late teens, but no-one knew what was wrong.

Then one day he suddenly he collapsed, while climbing the stairs

“My sister noticed that my heart was going very fast. They took me by ambulance to Northwick Park and they took me to accident and emergency.

“They asked me if I smoked or took drugs.

“They had me on one of the wards and I fell sick and fainted and then I woke up in intensive care and I was all attached to these tubes.

“I woke up and the priest was giving me the last rites.”

Transplant

Two years later doctors said Carl, who had cardiac myopathy, needed a transplant to stand any chance of surviving.

“They told me they had found a heart and my parents and I were crying we were overjoyed.

“If I had not had the transplant I would have been sent home to die.”

Sherrie Panther, senior sister at Harefield Hospital, where Carl had his transplant, said his continuing success acted as beacon of hope for people on the waiting list for organ transplants.

She said that people could look at Carl, whom she has nursed since he was first admitted in his early 20′s, and see how well he had coped and how fit he is and gain hope about their own future health.

“At the time it was said he was going to die. He had cardiac myopathy. His heart was diseased and enlarged, if only people out there could see there are people who are doing so well.”

“It is not all doom and gloom. Carl inspired me to go into transplants. If you see somebody who is so sick and then they become so well it does inspire you.”

She said that the transplants gave patients a new lease of life, allowing them, like Carl, to explore avenues they had never previously considered.

“They may be able to walk down the aisle to get married or carry out their life long ambitions like flying a plane.”

“If Carl had not had the transplant he would not be doing the Olympics and doing good things.”

Teacher Changing Lives

January 22nd, 2010 | No Comments | Posted in Uncategorized

Yoga for Weight Loss?

January 22nd, 2010 | No Comments | Posted in Uncategorized

It can help you find your bliss, and some say yoga may also help you shed those extra pounds.

By Colette Bouchez
WebMD Weight Loss Clinic – Feature

Reviewed By Louise Chang, MD

Jennifer Aniston does it. Reports are that Liv Tyler, Halle Berry, Madonna, David Duchovny and supermodel Christy Turlington do it, too. Many professional athletes are said to be doing it in an effort to improve their games.

–>The “it” is yoga, a sophisticated mind-body exercise many believe can do everything from tighten your buns to change your outlook on life.

But can this no-strain, work-at-your-own-level exercise really help you lose weight?

It’s true most types of yoga don’t have anything near the calorie-burning power of aerobic exercise. A 150-pound person will burn 150 calories in an hour of doing regular yoga, compared to 311 calories for an hour of walking at 3 mph. But it is exercise, after all, and many practitioners believe yoga can indeed help people take off extra pounds.

“Yoga is a phenomenal way to put you in touch with your body the way nothing else can, and yes, it can help you lose weight,” says instructor Dana Edison, director of Radius Yoga in North Redding, Mass., and a certified personal trainer with the American College of Sports Medicine.

Celebrity yoga trainers Ana Brett and Ravi Singh, who have worked with such hotties as Madonna and Gwyneth Paltrow, also believe in yoga’s weight-loss powers.

“We have seen it in ourselves, we have seen it in our clients – yoga can give you a real workout even if you are a beginner,” says Brett, who, with Singh, created the best-selling DVD program Fat Free Yoga.

How Does It Work?

In 2005, medical researcher and practicing yogi Alan Kristal, DPH, MPH, set out to do a medical study on the weight-loss effects of yoga.

With funding from the National Cancer Institute, Kristal and colleagues at the Fred Hutchinson Cancer Research Center in Seattle led a trial involving 15,500 healthy, middle-aged men and women. All completed a survey recalling their physical activity (including yoga) and their weight between the ages of 45 and 55. Researchers then analyzed the data, teasing out other factors that could influence weight change – such as diet or other forms of exercise.

The end result: They found yoga could indeed help people shed pounds, or at least keep them from gaining weight.

“Those practicing yoga who were overweight to start with lost about 5 pounds during the same time period those not practicing yoga gained 14 pounds,” says Kristal.

For the study, he says, practicing yoga was defined as at least one 30-minute session per week for four or more years.

Kristal says it’s not clear just how yoga might help people keep off the pounds, at least from a scientific standpoint. His own opinion is that the effects are subtle, and related to yoga’s mind-body aspects.

“The buzzword here is mindfulness — the ability to observe what is happening internally in a non-reactive fashion,” he says. “That is what helps change the relationship of mind to body, and eventually to food and eating.”

Adds Edison: “Yoga makes you more susceptible to influence for change – so if you are thinking you want to change your lifestyle, you want to change the way you think about food, you want to get over destructive eating patterns, yoga will help give you the spiritual connection to your body that can help you make those changes.”

Another idea is that yoga forges a strong mind-body connection that ultimately helps make you more aware of what you eat and how it feels to be full.

“Essentially, in yoga you learn your body is not your enemy, and the conscious awareness of the body that you gain translates into better appetite control,” Edison says.

Power Yoga: The New Attitude

While some say yoga is too tame for extreme weight loss, many devotees of the practice known as “power yoga” disagree.

Power yoga is an Americanized version of traditional Kundalini techniques. Instructors like Singh and Brett believe it can offer all the fat-burning potential – and heart benefits — of an aerobic workout.

While traditional types of yoga are based on breathing techniques paired with static poses, Singh says, power yoga combines meditative breathing with faster, more active movements. The result, he says, is a workout that can be more aerobic than . . . aerobics!

Aerobic means to exercise in the presence of oxygen, so when you are doing the traditional yoga breathing along with the more active exercises, you’re doing exactly that,” he says. “Our ‘breath of fire’ technique, for example, is one of many we use to help you burn calories while you breathe.”

Edison concedes power yoga may help some people lose weight, but she questions whether it could work for the yoga novice, or the average out-of-shape dieter.

“Can yoga build muscle? Yes. Is a fast-paced, power class aerobic? Sometimes. And can you sweat out water weight in a 105-degree room? Sure. But can the average overweight person effectively shed pounds through a one-size-fits-all physical yoga practice? Not realistically or safely,” Edison tells WebMD.

What about using power yoga to jump-start a weight loss plan? Kristal says even the most forceful power yoga techniques won’t equal the health benefits of a cardiovascular workout — nor will yoga ever burn calories quickly at a significant level.

“It’s just not medically feasible – it’s not going to happen,” he says.

Still, Brett and Singh say they’ve seen firsthand that it can work, even for beginners.

“People come to yoga for many different reasons, but we have seen many success stories in terms of losing weight and learning to control weight,” says Brett. “Active yoga, even for the novice, can change your body and your life.”

Making Yoga Work for You

One thing all our experts agree on is that yoga can be a terrific introduction to the world of fitness.
To help get you started, they offer these tips:

  1. Practice in a room without mirrors, and put the emphasis on your internal experience rather than your outer performance.
  2. Learn to experience the sensation of movement, down to the tiniest micro movement.
  3. Always try to find your “edge” — the place where your body feels challenged, but not overwhelmed. When you achieve this, keep an open, accepting state of mind.
  4. Give yourself permission to rest when you’re tired.
  5. Combine your yoga session with positive self-talk. Appreciate your efforts and praise your inner goodness.
  6. Go to class faithfully. If you work out at home, set a specific day and time for your yoga session and stick to it.
  7. Recognize that you are not only working on your body, but are also working to develop qualities like patience, discipline, wisdom, kindness and gratitude.
  8. Look for a teacher (in a class or on video) who you feel offers a balance between gentleness and firmness, and who inspires you to practice.
  9. Recognize that simply buying a yoga DVD or attending the class is a step toward creating a better you. Use it as momentum to keep going.
  10. Realize your efforts are not just inspiring you, but also inspiring others as you become more attuned to who you are, inside and out.

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